Question:
Can anyone tell me if these terrible complications ever occur with Pentasa too? Asacol and Pentasa are actually the same the drug, just delivered to the bowel differently. Alice. – Hide quoted text — Show quoted text -> >> An enquiry was made re: Asacol and side-effects. One little known side > >> effect is that it can cause kidney failure. My husband was on it for 4 > >> years with no problem. Last fall he had renal failure, it was > attributed > >> to the Asacol. > >Are there any warning signs to heed about renal failure? What should a > >person look for? > My Doctor told me that if any signs became visible, then it was too late > to act properly. He scans my blood regularly for warning signs. That is , > apperantlly, th only way.
– For more information about this service, send e-mail to:
Response:
How frequently should someone’s blood be screened when on Asacol (or other 5-ASA drugs)? Yearly? Quarterly? Regards/Liz – Hide quoted text — Show quoted text -> My Doctor told me that if any signs became visible, then it was too late > to act properly. He scans my blood regularly for warning signs. That is , > apperantlly, th only way. > — > For more information about this service, send e-mail to:
Response:
An enquiry was made re: Asacol and side-effects. One little known side effect is that it can cause kidney failure. My husband was on it for 4 years with no problem. Last fall he had renal failure, it was attributed to the Asacol. At the bottom of the Physcian’s reference for it, it is mentioned. If you are on it — have your kidney functions checked regularly. Garth had no history of kidney problems pre-Asacol.
Response:
> An enquiry was made re: Asacol and side-effects. One little known side > effect is that it can cause kidney failure. My husband was on it for 4 > years with no problem. Last fall he had renal failure, it was attributed > to the Asacol.
Are there any warning signs to heed about renal failure? What should a person look for?
Response:
>> An enquiry was made re: Asacol and side-effects. One little known side > effect is that it can cause kidney failure. My husband was on it for 4 > years with no problem. Last fall he had renal failure, it was attributed > to the Asacol. >Are there any warning signs to heed about renal failure? What should a >person look for?
My sister died on Sept 25th. She was 32 years old and she, like myself, had CD. It all started when her kidneys failed, apparently due to a reaction to sulfasalazine. The doctors kept telling her that her kidney function could possibly return, but she just kept getting sicker. It’s a long story, but bottom line is, she got weaker and sicker, and they basically ignored her. They said she wasn’t trying hard enough to get her strength back. I don’t know if anything they did constitutes legal medical malpractice, but she wasn’t just seeing one doctor. She saw a lot of doctors who apparently agreed with each other. Kidney failure is a very rare complication of some of the drugs we take to control our IBD. Her first symptoms were flu-like, but rapidly progressed to where she was extremely ill. Her platelet count dropped dramatically and she got pinpoint hemorrhages all over her body. They looked sort of like a million hickeys. I miss her terribly. I think this personal tragedy for me emphasizes the need to be familiar with the drugs we take, and make sure we get the blood tests we need to monitor our body’s reaction to them. Most of all, I think it is so important to have a doctor who will encourage and answer all our questions. If your doctor doesn’t, find a new one. If you feel rushed when you’re with him/her, or just don’t like their personality, no matter what their reputation is, no matter who else may see them, if you aren’t comfortable with a doctor, find a new one. Even if it’s the tenth doctor you’ve seen. You CAN die from UC/CD, or the treatment for these diseases. Don’t ignore your body. Your life may depend on it. After all, no matter what your doctor says, you know your own body better than anyone. You live in it every day. Sandy
Response:
Sandy, I am so sorry to hear about your sister. Even though we have never met, I truly feel for you. I’m sure I am not alone on this group in feeling this way. Please accept my sympathy and good wishes. Marie Craven, Melbourne, Australia.
Response:
- Hide quoted text — Show quoted text ->> An enquiry was made re: Asacol and side-effects. One little known side >> effect is that it can cause kidney failure. My husband was on it for 4 >> years with no problem. Last fall he had renal failure, it was > attributed >> to the Asacol. >Are there any warning signs to heed about renal failure? What should a >person look for?
My Doctor told me that if any signs became visible, then it was too late to act properly. He scans my blood regularly for warning signs. That is , apperantlly, th only way. eric lyons Buda, Texas Wandering About Wondering Eric Lyons ~ Buda, Texas ~ Wandering About Wondering
Response:
>Sandy, >I am so sorry to hear about your sister. Even though we have never >met, I truly feel for you. I’m sure I am not alone on this group in >feeling this way. Please accept my sympathy and good wishes. >Marie Craven, >Melbourne, Australia.
Thank you sooooo much for the support and the thoughtful words of encouragement. They mean more to me than you can know. For those of you who haven’t heard the story: My sister Jeri, and I both had crohns disease. My CD was flaring this spring when she was first diagnosed with Crohns. Jeri was my baby sister. I was the oldest of 5. As children, she was always making a nuisance of herself, following me around, trying to copy whatever it was I was doing. As adults, we became so much more than sisters, we were best friends. No, we were closer than best friends even. She’s the one I told my secrets to. It was my shoulder she would bathe with tears on a bad day. Her doctor put her on sulfasalazine for her Crohns disease. It worked great for her crohns, but she had a very rare reaction to it. Her kidneys failed first, then one by one, her major organs failed and she died. It has been a very difficult time for me and I’m still struggling with this horrible CD flare. To complicate matters further, We promised each other years ago that if one of us should ever die and leave children who needed parenting, that we would care for the other’s children. Well, as it happens, she was the single parent of 2 kids. Her husband, their father, walked out on them years ago. Just when we gained extra family members, our income has gone down. I’ve been the primary bread winner for our family for years now, and this flare has forced me to go on long term disability. Long term disability pays 66+2/3% of my BASE salary. Problem is, a large portion of my income came from bonuses I earn each year. Whewww… There’s more, but I think you get the picture. It’s a little rough sailing right now, and the support I get here means SO much! :-) I feel like you all are almost family, creating a link between us with words, not unlike a comforting outstretched hand. Sandy
If you like this post and would like to receive updates from this blog, please subscribe our feed.