Question:
Sorry….was in the shower….will call later or tomorrow…or you can. 
Rae
– Hide quoted text — Show quoted text -> Albert….I’d been worried, but I’ve been so depressed and distracted > myself….that’s no
Response:
I applaud your effort Albert in what you are doing for your parents. They did for you so should you do for them. I hope I said that right.. Ronnie 
– Hide quoted text — Show quoted text -> Albert, > I’m hoping your pain doc visit goes very well indeed! > It’s a shame that we don’t get any preparation for "parenting our > parents", it can be a full time stressor, you need to take time for > yourself when you can. > As far as the group is concerned, it’s horrifying that you would > reach out within a support group and get the exact opposite. Of > course it’s a mixed bag of people, and often hard to know who the > "good guys" are. When you’re hurting, you need the ones who are on > your side to encourage you…not hurt you further. > Please keep us appraised of your pain doc visit, > Good luck, > codeee > Comrade Codeee, > Thank you so much for the support. I truly wish I had taken parenting > classes for adult children some days. My goal is to keep both folks out > of "the home" as long as possible, as I know that is very important to > them. > Re: the doctor appointment, some days I wish there was someone to put 36 > cents in the pishka for me :-} Hopefully, later this week I will have > some good news, you just never know. > With Love, Caring, & Peace, > Albert, still trying to move mountains ;-} > — > Tis easier to go thru the eye of a needle, than the knee of an idol > web http://www.schmendrik.org
Response:
- Hide quoted text — Show quoted text -> Albert, > I’m hoping your pain doc visit goes very well indeed! > It’s a shame that we don’t get any preparation for "parenting our > parents", it can be a full time stressor, you need to take time for > yourself when you can. > As far as the group is concerned, it’s horrifying that you would > reach out within a support group and get the exact opposite. Of > course it’s a mixed bag of people, and often hard to know who the > "good guys" are. When you’re hurting, you need the ones who are on > your side to encourage you…not hurt you further. > Please keep us appraised of your pain doc visit, > Good luck, > codeee > Comrade Codeee, >Thank you so much for the support. I truly wish I had taken parenting >classes for adult children some days. My goal is to keep both folks out >of "the home" as long as possible, as I know that is very important to >them. >Re: the doctor appointment, some days I wish there was someone to put 36 >cents in the pishka for me :-} Hopefully, later this week I will have >some good news, you just never know. > With Love, Caring, & Peace, > Albert, still trying to move mountains ;-}
Dear Albert, I will try to do something *equivalant* to the Pishka for you…as you have done for me before. I just hope it works as well as yours did! comrade codeee
Response:
–Re: the doctor appointment, some days I wish there was someone to put 36 –cents in the pishka for me :-} Hey, how do you know that I don’t?? Over here it’s a pushke, but 36 is still double chai and that’s what I wish for you, chaver! mary
Response:
– Hide quoted text — Show quoted text – > Albert, > I’m hoping your pain doc visit goes very well indeed! > It’s a shame that we don’t get any preparation for "parenting our > parents", it can be a full time stressor, you need to take time for > yourself when you can. > As far as the group is concerned, it’s horrifying that you would > reach out within a support group and get the exact opposite. Of > course it’s a mixed bag of people, and often hard to know who the > "good guys" are. When you’re hurting, you need the ones who are on > your side to encourage you…not hurt you further. > Please keep us appraised of your pain doc visit, > Good luck, > codeee
Comrade Codeee, Thank you so much for the support. I truly wish I had taken parenting classes for adult children some days. My goal is to keep both folks out of "the home" as long as possible, as I know that is very important to them. Re: the doctor appointment, some days I wish there was someone to put 36 cents in the pishka for me :-} Hopefully, later this week I will have some good news, you just never know. With Love, Caring, & Peace, Albert, still trying to move mountains ;-} — Tis easier to go thru the eye of a needle, than the knee of an idol web http://www.schmendrik.org
Response:
Albert….I’d been worried, but I’ve been so depressed and distracted myself….that’s no excuse and I’m so sorry. I WISH you’d call when things get like this….you still have my #? I am not 100% (hell, I MIGHT be about 15%,) but I can LISTEN if you need….. Rae
– Hide quoted text — Show quoted text -> Now why dont you really tell us why you have not been on… > Ronnie
Response:
> Albert….I’d been worried, but I’ve been so depressed and distracted > myself….that’s no excuse and I’m so sorry. I WISH you’d call when things > get like this….you still have my #? I am not 100% (hell, I MIGHT be about > 15%,) but I can LISTEN if you need….. > Rae
Rae, Thank you so much for the support. Sometimes with some of the fighting & harsh words that go on here, I tend to forget that our main mission is still support. Yes, I still have your number & promise to call soon :-} With Love, Caring, & Peace, Albert, still trying to move mountains ;-} — Tis easier to go thru the eye of a needle, than the knee of an idol web http://www.schmendrik.org
Response:
Albert, I’m hoping your pain doc visit goes very well indeed! It’s a shame that we don’t get any preparation for "parenting our parents", it can be a full time stressor, you need to take time for yourself when you can. As far as the group is concerned, it’s horrifying that you would reach out within a support group and get the exact opposite. Of course it’s a mixed bag of people, and often hard to know who the "good guys" are. When you’re hurting, you need the ones who are on your side to encourage you…not hurt you further. Please keep us appraised of your pain doc visit, Good luck, codeee – Hide quoted text — Show quoted text -> Now why dont you really tell us why you have not been on… > Ronnie > > Greetings All, > > Been busy sharing duties with family taking care of my Aunt Katie, who > > has finally gotten out of the hospital for the second time in less than > > 60 days. Being 87 is part of the problem, not cooperating with the > > doctor’s requests is also part of the problem. At least she admits > > this, and is trying to work on hit. > > Also, my mother has been in & out of the ER last 30-45 days with a > > difficult to dianose problem. The toss-up is between some type of heart > > problem, and some type of GI problem. To Mom’s credit, she follows the > > doc’s requests to the letter, and at 73 really works hard to improve her > > own health. > > Myself, I may finally be going on MSContin sometime this week. Only the > > appointment with the pain doc will tell for sure :-} After being on the > > group for 3-4 years now on & off, along with the Oxycontin I have > > already tried, the MSContin certainly looks like one of the least > > troublesome drugs out there. I am aware that we all react differently, > > only basing my opinion on personal research & experience. > > I certainly hope that everyone is feeling as painfree as possible, > > getting as much REM3 sleep as they can, and living life to the fullest > > possible extent for folks like us. > Ronnie, >I am sorry to say that this posting describes the main reasons that I >have not been on the group lately. You are referring to another reason >why I have not been on the group lately, that is, a specific email that >arrived in my mail box from a member of this group. >This individual had been communicating with me prior to my Botox trigger >point injections. The intense pain had been unrelenting for months on >end, and had just about convinced me to end it all. For the first time >since I had rejoined the group in October of 2000, about a 10 month time >period, the pain got the better of me on that particular day, and I said >things that I will always regret to the individual in question. >Instead of asking me why there was this dramatic change in my regular >behavior, this individual remained silent at the time it happened. A few >weeks later, the person "reamed me" a new one via email. I was informed >that I had to be perfect. If I ever slipped, and the pain got the better >of me and I behaved hurtfully towards others, I was a failure. Even if >this was the first time in 10 years, instead of 10 months, that the pain >had gotten the better of me, I would still be considered a failure. >Well, I hate to disappoint anyone, but in my belief system, only God is >perfect. The concept that human beings suffering chronic pain will >never slip-up and let the pain get to them, and on occasion behave in a >hurtful fashion towards others, is just plain silly. We all do the best >that we are capable of, but every human being has a breaking point when >it comes to pain & suffering. The idea that we can always predict when >this breaking point will occur, and sequester ourselves away from others >so no one ever gets hurt, is also just plain silly. >Unless someone in the group is using a crystal ball or a psychic, I >personally don’t have the power to predict the future. Having talked to >a number of other group members via email or on the phone after this >occurred, they suggested the following: When the pain & suffering is at >it’s worst is the most critical time to be around the group. That is >when we all need support the most. And being chronic pain sufferers >ourselves, we already know that no one is perfect all the time. People >slip on occasion, they appologize, and the person who was hurt gets over >it, and life goes on. >I’ve chosen not to mention any names because the purpose of this posting >is not to hurt anyone. It was simply to explain to Ronnie and anyone >else who was curious why I have been gone so much recently. >My own cup continues to runneth over :-{ Recently, I have had to work >with my father to help him see why taking the Parkinson’s related drug >that his internist gave him was in his own best interest. He was the >one who asked for the drug, since his arms & hands have been shaking so >badly. He has been embarrassed at what the Parkinson’s disease was >doing to his body, and angry that at 80 years of age he has a new >challenge to contend with. Sadly, most of us are used to taking meds, >even if on occasion the PDR or info included with the med concerns us. >It is but one of the many methods we use to improve the quality of our >lives. Participating in this support group is another modality some of >us use to improve the quality of our lives. Knowing that you are not >alone with the pain is very powerful medicine. >As always, I hope that everyone is feeling as painfree as possible, >getting all the REM3 sleep they need, and living life to the fullest >with family, friends, partners and others. > With Love, Caring, & Peace, > Albert, still moving mountains ;-}
Response:
– Hide quoted text — Show quoted text -> Now why dont you really tell us why you have not been on… > Ronnie > Greetings All, > Been busy sharing duties with family taking care of my Aunt Katie, who > has finally gotten out of the hospital for the second time in less than > 60 days. Being 87 is part of the problem, not cooperating with the > doctor’s requests is also part of the problem. At least she admits > this, and is trying to work on hit. > Also, my mother has been in & out of the ER last 30-45 days with a > difficult to dianose problem. The toss-up is between some type of heart > problem, and some type of GI problem. To Mom’s credit, she follows the > doc’s requests to the letter, and at 73 really works hard to improve her > own health. > Myself, I may finally be going on MSContin sometime this week. Only the > appointment with the pain doc will tell for sure :-} After being on the > group for 3-4 years now on & off, along with the Oxycontin I have > already tried, the MSContin certainly looks like one of the least > troublesome drugs out there. I am aware that we all react differently, > only basing my opinion on personal research & experience. > I certainly hope that everyone is feeling as painfree as possible, > getting as much REM3 sleep as they can, and living life to the fullest > possible extent for folks like us.
Ronnie, I am sorry to say that this posting describes the main reasons that I have not been on the group lately. You are referring to another reason why I have not been on the group lately, that is, a specific email that arrived in my mail box from a member of this group. This individual had been communicating with me prior to my Botox trigger point injections. The intense pain had been unrelenting for months on end, and had just about convinced me to end it all. For the first time since I had rejoined the group in October of 2000, about a 10 month time period, the pain got the better of me on that particular day, and I said things that I will always regret to the individual in question. Instead of asking me why there was this dramatic change in my regular behavior, this individual remained silent at the time it happened. A few weeks later, the person "reamed me" a new one via email. I was informed that I had to be perfect. If I ever slipped, and the pain got the better of me and I behaved hurtfully towards others, I was a failure. Even if this was the first time in 10 years, instead of 10 months, that the pain had gotten the better of me, I would still be considered a failure. Well, I hate to disappoint anyone, but in my belief system, only God is perfect. The concept that human beings suffering chronic pain will never slip-up and let the pain get to them, and on occasion behave in a hurtful fashion towards others, is just plain silly. We all do the best that we are capable of, but every human being has a breaking point when it comes to pain & suffering. The idea that we can always predict when this breaking point will occur, and sequester ourselves away from others so no one ever gets hurt, is also just plain silly. Unless someone in the group is using a crystal ball or a psychic, I personally don’t have the power to predict the future. Having talked to a number of other group members via email or on the phone after this occurred, they suggested the following: When the pain & suffering is at it’s worst is the most critical time to be around the group. That is when we all need support the most. And being chronic pain sufferers ourselves, we already know that no one is perfect all the time. People slip on occasion, they appologize, and the person who was hurt gets over it, and life goes on. I’ve chosen not to mention any names because the purpose of this posting is not to hurt anyone. It was simply to explain to Ronnie and anyone else who was curious why I have been gone so much recently. My own cup continues to runneth over :-{ Recently, I have had to work with my father to help him see why taking the Parkinson’s related drug that his internist gave him was in his own best interest. He was the one who asked for the drug, since his arms & hands have been shaking so badly. He has been embarrassed at what the Parkinson’s disease was doing to his body, and angry that at 80 years of age he has a new challenge to contend with. Sadly, most of us are used to taking meds, even if on occasion the PDR or info included with the med concerns us. It is but one of the many methods we use to improve the quality of our lives. Participating in this support group is another modality some of us use to improve the quality of our lives. Knowing that you are not alone with the pain is very powerful medicine. As always, I hope that everyone is feeling as painfree as possible, getting all the REM3 sleep they need, and living life to the fullest with family, friends, partners and others. With Love, Caring, & Peace, Albert, still moving mountains ;-} — Tis easier to go thru the eye of a needle, than the knee of an idol web http://www.schmendrik.org
Response:
Now why dont you really tell us why you have not been on… Ronnie
– Hide quoted text — Show quoted text -> Greetings All, > Been busy sharing duties with family taking care of my Aunt Katie, who > has finally gotten out of the hospital for the second time in less than > 60 days. Being 87 is part of the problem, not cooperating with the > doctor’s requests is also part of the problem. At least she admits > this, and is trying to work on hit. > Also, my mother has been in & out of the ER last 30-45 days with a > difficult to dianose problem. The toss-up is between some type of heart > problem, and some type of GI problem. To Mom’s credit, she follows the > doc’s requests to the letter, and at 73 really works hard to improve her > own health. > Myself, I may finally be going on MSContin sometime this week. Only the > appointment with the pain doc will tell for sure :-} After being on the > group for 3-4 years now on & off, along with the Oxycontin I have > already tried, the MSContin certainly looks like one of the least > troublesome drugs out there. I am aware that we all react differently, > only basing my opinion on personal research & experience. > I certainly hope that everyone is feeling as painfree as possible, > getting as much REM3 sleep as they can, and living life to the fullest > possible extent for folks like us. > — > Tis easier to go thru the eye of a needle, than the knee of an idol > web http://www.schmendrik.org
Response:
Hey Albert, It is great to see you around. I hope things settle down for everyone in your family. Keep me posted on the Pain Doc visit….hope things turn out well. Robin I am *not* a Medical Doctor (MD) or *any* other type of Medical Professional. PLEASE consult your own Dr. for medical advice. The information posted is information I have learned from researching or learning from my own disease.
Response:
Greetings All, Been busy sharing duties with family taking care of my Aunt Katie, who has finally gotten out of the hospital for the second time in less than 60 days. Being 87 is part of the problem, not cooperating with the doctor’s requests is also part of the problem. At least she admits this, and is trying to work on hit. Also, my mother has been in & out of the ER last 30-45 days with a difficult to dianose problem. The toss-up is between some type of heart problem, and some type of GI problem. To Mom’s credit, she follows the doc’s requests to the letter, and at 73 really works hard to improve her own health. Myself, I may finally be going on MSContin sometime this week. Only the appointment with the pain doc will tell for sure :-} After being on the group for 3-4 years now on & off, along with the Oxycontin I have already tried, the MSContin certainly looks like one of the least troublesome drugs out there. I am aware that we all react differently, only basing my opinion on personal research & experience. I certainly hope that everyone is feeling as painfree as possible, getting as much REM3 sleep as they can, and living life to the fullest possible extent for folks like us. — Tis easier to go thru the eye of a needle, than the knee of an idol web http://www.schmendrik.org
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